About
Our Mission
The Child Genetic Screening Alliance (CGSA) is a nonprofit coalition advocating for policies that improve the health outcomes of children through timely diagnosis of rare genetic conditions.
Board
-
Shannon Belmont
Board Chair
GeneDx
-
Gina Cioffi
Board Co-Chair
Chiesi Global Rare Diseases
-
Lynsey Chediak
Board Treasurer
BioMarin
-
Julie Pawelczyk
Board Secretary
The Conafay Group
Steering Committee Members
-
Daniel Mayne
BioMarin
-
Michey Tovar
Revvity
-
Parisa Sanandaji
Stoke Therapeutics