Child Genetic Screening Alliance

About

Our mission

The Child Genetic Screening Alliance (CGSA) is a nonprofit coalition advocating for policies that improve the health outcomes of children through timely diagnoses of rare, inherited childhood genetic diseases.

Board

  • Shannon Belmont, Board Chair

    Shannon Belmont

    Board Chair

    GeneDx

  • Gina Cioffi, Board Co-Chair

    Gina Cioffi

    Board Co-Chair

    Chiesi USA

  • Lynsey Chediak, Board Treasurer

    Lynsey Chediak

    Board Treasurer

    BioMarin

  • Julie Pawelczyk, Board Secretary

    Julie Pawelczyk

    Board Secretary

    The Conafay Group

Steering Committee members

  • Daniel Mayne

    Daniel Mayne

    BioMarin

  • Michey Tovar

    Michey Tovar

    Revvity

  • Parisa Sanandaji

    Parisa Sanandaji

    Stoke Therapeutics